To truly understand patient needs, it’s critical to understand a wide range of perspectives. A recent survey found that Asian, black, and Hispanic respondents were nearly twice as likely as white respondents to have never heard of clinical research. Further, black Americans account for about 13% of the US population and 22% of yearly cancer cases, but the median enrollment of black Americans in clinical trials was about 4.5%.
Mirroring your trial base against the general population ensures you have enough different voices from which to draw data and insights and capture a wide range of individual needs for your therapies to address.
3. Develop patient-friendly educational materials and support programs
Removing as many barriers as possible is critical to keeping patients aware, engaged, and motivated to participate in their therapies. Findings from our Connected Health Consumer Report afghanistan phone number list indicate that receiving accessible, digestible information on the channels they prefer is critical to building trust. Simple, clear communications that avoid ‘medicalese’ can go a long way in doing so.
Patients with high levels of trust are more than twice as likely to welcome assistance — whether in the form of patient and caretaker support programs or help to get to appointments than distrustful patients. Lack of trust dampens their desire to engage, weakening connections between patients and health companies as consumers pull away.
Further, patients who trust are more willing to share non-medical information — data that can help shape therapies that account for non-clinical factors. Greg Hurst, a Salesforce solution consultant, was diagnosed with Spinal Bulbar Muscular Atrophy in 2007. This disease is thought to affect 140,000 people worldwide. Symptoms include tremors, muscular cramping, weakness that results in difficulty swallowing and breathing, as well as mobility issues. Hurst stresses the importance of taking an accessible and patient-friendly approach to care, emphasizing that every patient has unique and individual needs.