Every individual is exactly that, an individual… Each of us is in a different spot in how we best manage our disorders. If we take a holistic look at accessibility and provide a net as wide as possible, we’re best situated to help people where they need help,” stated Hurst.
Because of the immense associated costs, pharmaceutical companies are typically motivated to invest in drug research and development when the populations who can benefit from that work are higher. That often means that rare conditions that affect only a small population, or “orphan” diseases, receive less attention and investment.
Grassroots efforts by patients and advocates, however, spurred a movement in the 1980s to incentivize support and investment for these rare diseases, ultimately leading to the passage of the 1983 Orphan Drug Act and completely changing the face of therapeutics for rare disorders.
Improve patient experiences from the ground up
Patient advocates continue to bring visibility to rare diseases that afghanistan phone number list range from grassroots social media campaigns to foundations calling for change and recognition in response to presidential guidance or directives. Eby notes, “I’m just trying to control the piece that I can, which is rallying people, getting them to donate, getting them to call their congressperson.” Listening to, and supporting, these advocates by bringing them into the process can go a long way into shaping better, more personalized therapies for patients. What is outside sales?A sales cycle goes from leads to prospects to customers, and along the way, we earn the right to keep talking, listening, and selling. We have to take it one step at a time and do those steps in the right order. It’s why we don’t dive into our product details before we’ve found out the problem they’re trying to solve. And it’s why we don’t send out a contract until we’re sure the right decision-makers are bought in.